Buy a ticket or a CD and Support Special Olympics and Noble

Scott's newest standup cd

Scott’s newest standup cd

This Saturday is the big fundraiser standup event in Fishers, IN. Click on this link to reserve tickets. See the poster at the bottom of the page.

If you can’t make it, but want to help raise money for these 2 great charities who do so much for people with developmental disabilities, click here and I will donate the profits this week to all sales of my Good Dad, Not a Great Dad cd.  Under the Gun entertainment site gave it their highest grade of an A, saying “it was the most memorable cd of 2013.

I promise you that you cannot not support any better organizations than these.

 

Maddie Meltdowns

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I try to show a positive reflection of life with my daughter, Maddie, but sometimes I feel a bit guilty in not giving a more complete picture of life with her. So many parents of kids on the spectrum go through constant struggles and are in a complete place of mental breakdown from the stresses. We are no different on that front. Today shows that other side, as lately Maddie has spent a lot of her time at home out of control of her emotions. These are actually pretty mild examples, as she tends to calm down some when the camera is on. She has no problem acting out of control with her family, but does not like her fans seeing her this way:) 

Happy Monday with Maddie April 14th edition

With her former Easter Seals camp counselor Billy Coon.

With her former Easter Seals camp counselor Billy Coon.

Just like the teachers/counselors who bring the best out of typically developing kids, the best people who work with kids with developmental disabilities are the one’s who bring a mix of humor, energy, and passion for their students, but are still able to be tough on them when needed. Today we meet a former summer camp counselor of Maddie’s who fits all of these characteristics.

Today’s post is dedicated to all the great people who are out there helping people with disabilities. As someone who is a parent of a child on the autism spectrum, I know that gig can be a bitch some days. Just know that unlike most, you are making a difference in what you do for families all across the world.

Life is More Challenging on the Autism Spectrum (Example Number 73)

Maddie at 7, the last year she could comfortably fit into her jeep.

Maddie at 7, the last year she could comfortably fit into her jeep.

It’s autism awareness month and I want to show a few more sides of Maddie. Today is a a more emotional side of Maddie than I usually film.

The world is not designed well for most on the autism spectrum. One of these examples is how Maddie is a 10 year old in chronological age, but is developmentally more like a 4 year old.  Here is a video with how difficult this is for Maddie to handle.

Happy Monday with Maddie: Comedy Fundraiser Show Edition

Maddie's Special Olympics of Hamilton County Bball Team

Maddie’s Special Olympics of Hamilton County Bball Team

Today Maddie and Scott promote the Indiana Standup to Autism event on Saturday, April 26th. The show will feature Scott doing standup and Cody Comet performing his totally unique magic, with added bonus Maddie hosting. Last year’s event was a great success. Proceeds in 2014 will go to NOBLE and Special Olympics of Hamilton County. Go to itsanautismthing dotcom to purchase tix or buy Scott’s cd. It’s Pledge drive time party people!

Here is the link to purchase tix to the April 26th show at Pinheads/Britton Tavern in Fishers, IN.

If you can’t make it to the show but want to help raise money for these great charities click on this link to Scott Long’s Good Dad/Not a Great Dad CD.

Now here is Happy Monday this week.

Maddie and Scott Discuss Autism

Maddie swinging with Grandpa at 4. At this age this was the only way she could stay on without someone holding her.

Maddie swinging with Grandpa at 4. At this age this was the only way she could stay on without someone holding her.

I am still out on a standup comedy road trip so I wasn’t able to do a Happy Monday video with Maddie this week. I thought instead I would offer up this video I did with Maddie about autism. I was asked to make it to be shown in a 4th Grade classroom. I didn’t have a lot of time to do it, so you will notice I’m talking a bit off the top of my head, as I did a 1 take Scott. Hey, maybe my measured tone will land me the successor to Fred Rogers gig.

We will be back next week and Happy Monday!

Happy Monday with Maddie: St. Patrick’s Day episode

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On this St. Patrick’s Day holiday, Maddie demonstrates some of the constant anxiety she’s been going through. It’s really manifested itself in negative ways lately, which have been tough for our whole family (and her school family, as well.)

I’m not going to get into all the details, since as you will see in the video, Maddie doesn’t want me to share them, but I do want to make sure that the fans of the site understand that Maddie is not just the girl you see in the videos. Her autism impacts her behavior and sometimes it’s not pretty.

Maddie had a tough week at school, as her behavior caused some red flags all week. The crescendo was Sunday on a car drive with Susan and her siblings. Maddie’s temper flared to an very out-of-control place and made for a really stressful and chaotic 25 minute trip back home from her grandparents house.

Parents of kids on the spectrum have many moments like this and it leaves you emotionally exhausted. As much as you feel badly for Maddie, you feel even worse for your other children who are scared of what is happening. It’s nearly impossible for siblings of kids on the spectrum not to develop scars from these episodes. All you can do is try to handle it the best you can in the moment and then talk to them later about the incident.

We love Maddie and we are thrilled that so many of you have joined us in your love for her, too. My ultimate goal with this site is to raise understanding and awareness. To do this, I want to show all sides of Maddie Long. Just like all people, she has her good and bad moments. How autism impacts these moments is that it escalates the level of good or bad.  The good news is that it seems like Maddie is off to Happy Monday. Her Irish eyes were smiling as she stepped on the bus…

Happy Monday with Maddie: A Special (Olympics) Night Kicks Off March Madness

In the Triumphant Locker Room

I’m sure you’ve seen some of the inspirational videos of kids on the autism spectrum making shots in high school basketball games. They are great examples of how we can all can feel connected to each other. I admit I cry tears of joy every time I see one.

If you have been moved by them, as awesome as these are, let me mention that there’s a great chance you will get a number of these moments if you attend a Special Olympics event. I have explained to the people who’ve never been that you will never feel so many emotions all going through you, as when you attend a Special Olympics game or meet.

Here are a couple secrets about the Special Olympics I’d like to share.

  • Most of the athletes aren’t that concerned if they have a big crowd or not. They just love getting a chance to be part of the whole experience. In the sports world that we live in, this is the one place where the athletes aren’t looking for money or fame, just an opportunity. 
  • We, as parents of these Special Olympic athletes, don’t see our kids getting to compete and have success anywhere close to what the parent of a typical child does. That is why the Special Olympics is so fulfilling to us.

If you have never been to a Special Olympics event, put it at the top of your bucket list. It’s easy to make happen and I’m pretty sure you will leave changed for the better. Do it for yourself. Watch this Happy Monday with Maddie video below for a great example of what I’m talking about.

Maddie Mash-up

Maddie has been playing dress-up for a long-time.

Maddie has been playing dress-up for a long-time.

As we begin March Madness I show one thing Maddie does in the house. She likes to pretend she is out for recess and she is a method actor, as she totally dresses up to get in character. This is a Larry Bird/Kurtis Blow/Maddie Mashup.

School Party in February

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Here is a glimpse of Maddie at school from a couple of weeks ago. Maddie loves school, but her focus in life is very short. This video gives you a good example of it.

NOTE: I’m guessing there must be some politically correct reason for Valentine’s Day to be called Friendship Day at her school. I will get Bill O’Reilly on it.